Possible Genetic Causes of CFS/ME – Volunteers Needed

Research Project – Possible Genetic Causes of CFS/ME

Volunteers Needed

It has long been suggested that there may be a genetic component to CFS/ME – in other words, is it an inherited condition? A new group (the ME/CFS Biomedical Partnership) has been set up to investigate that possibility. The Partnership is applying to the Medical Research Council (MRC) and the National Institute for Health Research (NIHR) for funding for this study.

If funding is granted the study will require 20,000 volunteers (CFS/ME patients) to take part. Every volunteer will be asked to provide a saliva sample. Each sample will be tested to see if a genetic factor can be identified.

Lead investigators in this project will be Professor Chris Ponting, human genetics specialist, University of Edinburgh,  and Dr Luis Nacul who leads the Cure ME team at the London School of Hygiene and Tropical Medicine.

Giving a saliva sample will be a very easy and non-invasive procedure, and reMEmber urges all CFS/ME people to take part. As a first step follow this link for more information about the project and to indicate your support:


It is most important that you indicate your support because the funding will be given only if it can be shown that there are about 20,000 potential participants. This does NOT commit you to taking part in the research; you will be given that choice later.