We campaign for good services for CFS/ME patients.
Thanks to our campaigning and our meeting at Hassocks in June 2003 “Meet the Decision Makers” with Howard Flight MP, Mid Sussex Primary Care Trust and the independent patient groups of Sussex, a CFS/ME service was commissioned for the whole of Sussex.
You can ask your GP to refer you to the service. Your GP should write a letter of referral to Sussex CFS/ME Service, Haywards Heath Health Centre, Heath Road, Haywards Heath, West Sussex, RH16 3BB. Tel: 01444 475799. There are clinics in Haywards Heath, Portslade and Eastbourne.
We can run self-management courses for CFS/ME sufferers – these courses entail a two and a half hour session once a week for six weeks. We have just started half-day sessions on happiness for CFS/ME patients. Please get in touch if your interested.
Improving understanding of the condition by organising professional presentations for patients and carers. Giving ongoing support and information to patients, carers and professionals.
The Director was a member of the Chief Medical Officer’s Working Group on CFS/ME which has produced best practice guidance for professionals, patients and carers. reMEmber will act as a lobbying organisation to ensure that these recommendations are implemented. The Director is also a member of the Horsham and Mid Sussex Clinical Commissioning Group.
We also provide a 24 page printed newsletter (which is posted/shipped to you) issued three times a year.
Information and Support
For information and advice about CFS/ME contact reMEmber telephone 01273 831733 or email firstname.lastname@example.org
Information and social events are held regularly in Haywards Heath, Southwick, Littlehampton and from time to time at other venues. See our Events section for further details.
Registered Charity No: 1077807