SPRING Newsletter 2022 The Spring Newsletter is available for download in pdf format now.
Helping you to MANAGE your ME
We help people with ME (Myalgic Encephalomyelitis), also known as CFS (Chronic Fatigue Syndrome), to get the best possible treatment and advice to enable them to lead happy and healthy lives.
As well as giving information and advice, reMEmber campaigns for better services and supports biomedical research. We belong to Forward ME, the national group of ME charities.
You can view the minutes of the latest Forward-ME meeting here.
We campaign for good services for CFS/ME patients.
Thanks to our campaigning and our meeting at Hassocks in June 2003 “Meet the Decision Makers” with Howard Flight MP, Mid Sussex Primary Care Trust and the independent patient groups of Sussex, a CFS/ME service was commissioned for the whole of Sussex.
You can ask your GP to refer you to the service. Your GP should write a letter of referral to Sussex CFS/ME Service, Haywards Heath Health Centre, Heath Road, Haywards Heath, West Sussex, RH16 3BB. Tel: 01444 475799. There are clinics in Haywards Heath, Portslade and Eastbourne.
Improving understanding of the condition by organising professional presentations for patients and carers. Giving ongoing support and information to patients, carers and professionals.
The Director was a member of the Chief Medical Officer’s Working Group on CFS/ME which has produced best practice guidance for professionals, patients and carers. reMEmber will act as a lobbying organisation to ensure that these recommendations are implemented. The Director is also a member of the Horsham and Mid Sussex Clinical Commissioning Group.
Support our cause by becoming a member for £10 a year. Please contact firstname.lastname@example.org for further details or to subscribe by cheque.
We also provide a 24 page printed newsletter (which is posted/shipped to you) issued three times a year.
Information and Support
For information and advice about CFS/ME contact reMEmber telephone 01273 831733 or email email@example.com
Registered Charity No: 1077807