Helping you to LIVE with | MANAGE your ME

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About Us

Helping you to MANAGE your ME

We help people with ME (Myalgic Encephalomyelitis), also known as CFS (Chronic Fatigue Syndrome), to get the best possible treatment and advice to enable them to lead happy and healthy lives.

Forward ME
As well as giving information and advice, reMEmber campaigns for better services and supports biomedical research. We belong to Forward ME, the national group of ME charities which meets at the House of Lords under the chairmanship of the Countess of Mar.

In 2014 Forward-ME established two important points: NICE admits its guideline on ME/CFS is seriously flawed and ME/CFS patients have a legal right to see the NHS specialist of their own choice (answers to a question in Parliament). To explain these points more fully we have reproduced a document and the minutes of the meeting here.

Why not become a member? With a quarterly newsletter you will keep up to date with all the latest info on ME/CFS.

Membership Info
About ME/CFS

What is ME/CFS?

CFS/ME is classified as a neurological illness by the World Health Organisation and the Department of Health. It is important to realise that it can be a serious illness, not just a matter of feeling tired.

The main symptoms are: muscle fatigue, pain, weakness and aching joints; problems with memory and concentration; sore throat; digestive problems; sensitivity to light and noise; painful glands; chest and abdominal pain; headaches.

Find out what is happening in your area

News and Events

Tea cup and pot
Events

Friday April 20 2pm Tea at Café Elvira

Friday April 20 2pm Tea at Café Elvira Friday April 20 2pm Tea at Café Elvira, Borde Hill Gardens, Balcombe Road, Haywards Heath, RH16 1XP. Please email info@remembercfs.org.uk to confirm attendance.

Events

Wednesday 24th April at 11am Coffee and Cake

Wednesday 24th April at 11am Coffee and Cake Wednesday 24th April at 11am Coffee and Cake to be held at Sarah’s House, 12 Selborne Avenue, Bexley, Kent DA5 3LE.  Please contact Helen on 01322 …

Tea cup and pot
Events

Friday 8 June 10.30am-1pm Feedback Session

Friday 8 June 10.30am-1pm Feedback Session  Friday 8 June 10.30am-1pm Feedback session  at Dove Lodge, 49 Beach Road, Littlehampton, BN17 5JG.  Please email info@remembercfs.org.uk to confirm your attendance.

All Our Events
We were awarded the Queen's Award for Voluntary Service in 2015

Queens Award

We were awarded the Queen’s Award for Voluntary Service for our works in the community to help people who suffer from the chronic illness ME in Mid Sussex. This is the highest award a voluntary group can receive in the UK.

We'd love to hear from you

Get in touch


WE WOULD REALLY LOVE TO HEAR FROM YOU.

Use the contact form on the left to email Janice or William Kent with any questions you may have, queries about membership or to enquire about any of the events coming up.

reMEmber

PO Box 1647,

Hassocks, West Sussex, BN6 9GQ

01273 831733
info@remembercfs.org.uk
Meet our patrons and medical experts

Our Team

Patrons
The Right Hon. Sir Nicholas Soames MP ∙ Anthony Pinching ∙ Baron Dholakia OBE DL ∙ Lord Flight ∙ Judy Parfitt ∙ Gwyneth Powell
Medical Advisers
Dr Amolak Bansal ∙ Professor Kevin Davies ∙ Professor Basant Puri ∙ Dr Karen Walker-Bone ∙ Dr. Willy Weir
Staff
Director – Janice Kent ∙ Secretary – William Kent ∙ Treasurer – Derek Hiscoke
Ethical Adviser
Professor Roger Homan
Trustees
Richard Burrows ∙ Dr Sue Davies ∙ Sue Deane ∙ Emma Rees ∙ Alan Sparkes ∙ Charles Taylor