All Party Parliamentary Group on M.E. update Following discussion between elected officers, the joint Secretariat, and M.E. charity partners, the All Party Parliamentary Group (APPG) on M.E. will not be …
Helping you to MANAGE your ME
We help people with ME (Myalgic Encephalomyelitis), also known as CFS (Chronic Fatigue Syndrome), to get the best possible treatment and advice to enable them to lead happy and healthy lives.
As well as giving information and advice, reMEmber campaigns for better services and supports biomedical research. We belong to Forward ME, the national group of ME charities which meets at the House of Lords under the chairmanship of the Countess of Mar.
In 2014 Forward-ME established two important points: NICE admits its guideline on ME/CFS is seriously flawed and ME/CFS patients have a legal right to see the NHS specialist of their own choice (answers to a question in Parliament). To explain these points more fully we have reproduced a document and the minutes of the meeting here.
Why not become a member? With a quarterly newsletter you will keep up to date with all the latest info on ME/CFS.
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News and Events
Friday 8 December 12.00pm – Shared Lunch Shoreham-by-Sea Friday 8 December 12.00pm shared lunch at Mel’s house: 47 Downside, Shoreham-by-Sea, BN43 6HF Tel: 01273 271337. Please contact Mel to confirm …
Friday 24 November 10.30am – Feedback Session in Littlehampton Friday 24 November 10.30am-1pm. Feedback session at Dove Lodge, 49 Beach Road, Littlehampton, BN17 5JG. Please email Janice or Bill Kent at …